I opened the letter, making note of the return address and thinking briefly, "Oh, the new support group meeting dates for 2010. Great!"
What I read instead was the tale of a heartbroken husband, informing those of us in the area Pulmonary Hypertension community of the passing of his wife.
Part of her obituary on the national PHA website reads as follows:
Wendy at the time of her passing was the Support group leader for two groups in XXXX. Her role was to promote Hope, Support, Advocacy, Awareness, in the communities of City A and City B. She assumed the Support group leadership role in 2007. She was co-chair of the first two charity golf tournaments and chair of two more. November 2009, Pulmonary Awareness month, she set up a Casino Night Fundraiser that in a bad economy raised $20,000 for the PHA. She received many accolades for an outstanding job organizing that event and was proud of exceeding her goal of $10,000.
She has touched so many people in XXXX and given them a sense of hope that they would not die in 6 months to 2 years, a time line many cases are given being diagnosed with a terminal illness. She was highly regarded on the national level also by the leaders of the PHA. Her motto was she is living with PH, not dying from it."
Wendy was a force. She always wore a smile and possessed a laugh with which she greeted anyone who came to a meeting or an event. She had a wry sense of humor, and she was a cheerleader for all her suffered from this terrible condition.
I did not know Wendy well, but her loss to our community has left me bereft and in mourning. Living with a chronic, life-threatening illness becomes a way of life, not a way to die, and most of the time I live in a state of acceptance. Death is a reality that I know can occur at any time, and yet.....the very idea of death seems an improbability.
Until Death takes one of our own. Then....then, I face my mortality.
And I scream, "Go to hell, Death! You can NOT have me too!"
RIP, Wendy. Godspeed. Take a deep breath, and feel no more pain.







